Tag Archives: aneurysm

Success Story!

Since opening in 1982, the Transitional Learning Center has enjoyed many successes with our patients.  Tony Strueby is one of those success stories.   Tony’s traumatic brain injury caused him to suffer significant deficits in speech and mobility which impacted many areas of his life.  With the help of the TLC staff, Tony was able to improve and adapt.  He has done so well that he has returned to working and driving.  Read more about Tony’s journey in this linked story from the Texas Department of Assistive and Rehabilitative Services (DARS):

 
http://www.dars.state.tx.us/news/stories/drs_tony.shtml

 
For those unfamiliar with DARS, it is a Texas state agency which provides funding for treatment and medical devices for Texas residents who have suffered traumatic brain injuries.  DARS has enabled many of our patients to receive treatment who would not otherwise have been able to do so due to a lack of insurance or having insurance that would not fund treatment.  As receiving treatment is vital for post-injury improvement, please click on the link below to see if you or a loved one would qualify for services through DARS:

http://www.dars.state.tx.us/drs/crs.shtml

Learn about brain injury treatment services at the Transitional Learning Center: tlcrehab.org

 

Holiday Adjustments-Part 3: Social Interactions and Attention

This is part 3 of a series on holiday adjustments.  As mentioned in parts 1 and 2, brain injury deficits may impact the ability for a brain injury survivor to participate as in previous years in holiday celebrations so adjustments may need to be made for the survivor to have a successful holiday.  Part 3 will focus on issues regarding social interactions and attention during holiday celebrations.

Our social skills are at the heart of what it means to be a connected person in our society and holiday celebrations tend to be key social situations.  Thus, holiday celebrations can be tricky for brain injury survivors to negotiate.  In many cases, holiday celebrations are the first time that friends and family members have seen the survivor since his/her injury.  In other cases, holiday celebrations are the first time that friends and family members have seen the survivor since he/she was in the intensive care unit of the hospital since people are most likely to visit in the initial period following the injury.  Often, holiday celebrations have dual areas of stress for a brain injury survivor.  The survivor is learning how to negotiate life with new deficits while family and friends are trying to spend extra time or give extra attention to the survivor.

Near death experiences catch our interest and spark our concern.  As such, friends and family often give survivors far more time and attention than previous holiday celebrations.  After a brain injury, many survivors are surprised that they are now the most popular person in the room.  Each family member comes by and asks what happened, how are they doing, how is therapy, etc.  Even one family member was standing right behind another family member who just asked these questions, the second family member may have the exact same questions as the first.  These queries are generally made with the best of intentions.  Family and friends want to show their concern and caring for their injured loved ones.  However, many survivors find this to be a frustrating and annoying experience.  For survivors, it is important to know that some version of this experience will occur at the holidays, particularly if many people have not seen the survivors since the initial injury and to remember that this is a reflection of caring.  Family and friends are often searching for a way to show their feelings to the survivor.  Having a good brushoff line can often be helpful (For example: “Thank you for asking about my health.  I appreciate the questions but it seems like that is all I have been talking about lately.  Can we talk about something else?”)  Family and friends need to remember that constant questions can be stressful.  If the questioning goes well, the questions can be experienced like an interview.  If it goes poorly, like a police interrogation.  They should consider talking about other issues as, such as the Thanksgiving football games or favorite music.  Some survivors and/or their families will send an e-mail or some similar communication updating everyone on the latest information and requesting that brain injury questions be kept to a minimum.

A more positive aspect of this extra attention is that brain injury survivors may find that they receive more phone calls, cards and gifts at holiday times than previously.  Sometimes these come from people who are not close to the survivor but are more distantly acquainted with the situation, such as a congregant at a family member’s church.  Again, though this may feel weird it still represents someone trying to reach out and show that he/she cares.

Changes in social skills can create big hurdles in social interactions at holidays.  Survivors and their families must keep in mind potential problems due to changes in social skills.  For survivors with difficulties that impact social skills, it is important that friends and family members at holiday parties know the best ways to interact with the survivor.  For survivors with language difficulties, this may include giving extra time for the survivor to speak, having the conversation partner slow their rate of speech, writing important words down for the survivor, pantomiming words or having the survivor use an augmentative communication device such as a speech program on an Ipad.  For survivors with impulsivity issues, family and friends may need to cue them to slow down and maintain the topic of conversation instead of going on tangents.  For survivors that have difficulty with nonverbal skills such as making eye contact or reading social situations accurately, family and friends may need to cue them for proper nonverbal skills such as looking at the conversation partner’s face while speaking.  For survivors with inappropriate behaviors, family and friends may need to cue them for issues such as cursing and sexual jokes.  It is important in all cases that family and friends who will be interacting with the survivor be given adequate information to best help the survivor succeed in their social interactions.  This can be via e-mail, phone call or personal discussion.  If a family or friend is caught unawares of social deficits, this can lead to a strain in relations.  For instance if a survivor’s friend does not know that the formerly soft-spoken survivor now needs help to reduce foul language, the foul language may be taken as a personal insult rather than a function of the injury.

Survivors and their families should also consider whether the survivor will do better in a smaller holiday celebration rather than a larger one.  Some survivors find that larger parties lead to more stress, agitation and/or social errors.  Also, the noise and activity of larger parties can become overwhelming for some survivors.  Certain survivors find that young children, with their noise and activity, can be quite problematic.  Further, some survivors would rather have a small celebration, especially in the early stages of recovery when they are not yet comfortable with their injury in public.  They may feel embarrassed by their deficits and would rather not have large number of individuals learn about the depth of their struggles.

It is often helpful for survivors, families and their therapists to try to problem-solve potential pitfalls and practice skills such as how best to talk to others about their injury experience.

Hopefully, this post provided insight on holiday adjustments due to attention and social interaction issues.

Learn about brain injury treatment services at the Transitional Learning Center: tlcrehab.org

Holiday Adjustments-Part 2: Participation

This is part 2 of a series on holiday adjustments.  As mentioned in part 1, brain injury deficits may impact the ability for a brain injury survivor to participate as in previous years in holiday celebrations so adjustments may need to be made for the survivor to have a successful holiday.  Part 2 will focus on some thoughts regarding participation in holiday celebrations.

One of the most difficult aspects of having a brain injury at holiday time is changes in the ability to participate in the holiday celebrations.  For instance, a brain injury survivor may have been the main cook for Thanksgiving but can no longer do so due to memory deficits or an inability to use the right side of the body.  This is a tremendous blow to the survivor’s self-esteem and pride.  Family members may try to be helpful by telling the survivor to “not worry” and that the family members will “take care of everything.”  Some survivors appreciate this but some find this to be a further attack to their self-esteem.  If there is one rule that rehabilitation therapists and professionals want brain injury survivors and their families to follow, it is to find tasks in the holiday celebrations that the survivor can participate in.

The first part of identifying holiday tasks that the survivor can participate in is to take a realistic assessment of the survivor’s skills and deficits.  Safety always has to be a priority but it should not overshadow reasonable options.  If a survivor has ataxia (inability to fully control muscle movement) in his or her arms, the survivor should not be lighting menorah candles for Chanukah.  Similarly, a survivor with balance issues should not be climbing on to the roof of a home to put up Christmas lights.  With this in mind, survivors almost always have strengths.  In fact, it is a rarity that a survivor cannot do anything to help with the holiday celebrations.  For instance, though a survivor in a wheelchair may not be able to put up all of the decorations on the Christmas tree, he or she may be able to put up the decorations on the lower part of the tree.  A survivor may not be able to cook a turkey but perhaps he or she could cut some of the vegetables for a salad or help set the table.  Even if a survivor cannot use his or her arms or legs, perhaps a role can be found such as leading the family in a prayer before eating or giving recipe directions to family members that are cooking.  Survivors with aphasia can sometimes sing, with help, familiar songs as the songs are so familiar that they can become automatic.  For instance, many aphasic survivors that struggle to name a common item like an apple can sing a holiday tune like “Jingle Bells” or “We Wish You a Merry Christmas” if given extra time and if someone sings with them.  If survivors and their family members look close enough, there is almost always something the survivor can do or help with.  Even a small task will help boost the survivor’s pride and self-esteem.  Moreover, injury or no injury, working together on holiday celebrations brings family together for a joyful opportunity to bond.

Many survivors struggle with the tradition of giving gifts at certain holidays such as Christmas and Chanukah, since they often have a much worse financial status due to their injury.  They have often lost jobs and have high medical expenses which sap their funds.  Many now rely on financial support from family members.  Usually, families and friends understand that the survivor is in a different financial state but the survivor may feel significant guilt over the inability to purchase gifts are previously.  Simply reassuring a survivor that the family members/friends understand the changes and are not worried about receiving a gift/smaller gift can help alleviate concerns.   Alternatively, a survivor can make a gift/card, with the help of a family member as necessary.  Everyone appreciates a homemade gift or card.  Families may choose to switch to a gift exchange in which everyone buys just one gift, places the gift in the bag, and everyone randomly chooses a gift.  One gift is far less costly than multiple gifts.  A limit on the cost of the gift can also be placed to further make participation easier and make the survivor feel less left out due to costs.  By de-emphasizing the focus on finances, the survivor is often better able to focus on the rest of the holiday celebrations.

Another consideration regarding holiday celebration participation is fatigue.  Holiday celebrations often go quite long and brain injury survivors may find that they become fatigued more easily than previously.  This is a particularly common issue during New Year’s celebrations.  Many survivors who are used to staying up until midnight to celebrate the new year find that they are exhausted by 8 p.m.  Sometimes, shifting the length of time that the survivors will be attending the celebrations can increase participation.  Three good hours of participation is better than five hours of exhaustion.  Moreover, some families change the time of the celebrations to make it easier on the survivors.  “Early” New Year’s eve celebrations are relatively common; after all, it is midnight somewhere.  Instead of a late Thanksgiving dinner, perhaps a Thanksgiving lunch is more feasible.  Perhaps gift opening can be done prior to a holiday meal rather than after the meal, which would speed up the main parts of the holiday celebration.  These are just a few of the ways in which post-injury fatigue can be better managed at a holiday celebration.

Hopefully this post raises more awareness on holiday adjustments in participation due to a brain injury.  The next part of this series will focus on holiday adjustments in social interactions and attention.

Learn about brain injury treatment services at the Transitional Learning Center: tlcrehab.org

Holiday Adjustments-Part 1: Location

As Thanksgiving approaches, it is important to be aware of the potential need for adjustments to be made to holiday celebrations in order to accommodate a brain injury survivor’s injury-related deficits.  Having a brain injury does not stop a survivor from celebrating a holiday, but it may put a few wrinkles into holiday plans.  Part 1 in this series on holiday adjustments will focus on some thoughts regarding the location of celebrations.

 
There are a number of issues that need to be addressed regarding the location of holiday celebrations in such a scenario.  First, if the survivor is in a wheelchair or uses another assistive device to aid mobility and is going to someone else’s home, is that home accessible?  Keep in mind that it is much easier to get a wheelchair across a hard floor than across carpeting and that for some survivors, a large pile (a term used to denote length of carpet fibers) carpet can provide quite the inconvenience.  Also, is there enough room in the bathroom for a wheelchair?  Should the survivor bring along a urinal if it is too hard to access the toilet?  If the survivor has problems with incontinence, is there somewhere available that the survivor could  be cleaned or change clothes if necessary?  Some families of brain injury survivors find that it is easier to host holiday celebrations at their own homes rather than travel to the homes of others since their homes have already been adapted to the needs of the survivor.

 
Survivors and their families should also consider the physical layout of the rooms where a celebration will take place.  For instance, it may help to move tables and chairs into a different configuration in order to make it easier for the survivor to move through.  A big issue to look for in the consideration of a given room is trip hazards, particularly around Christmas.  It is important that toys and gifts not be left around on the floor as these can easily become trip hazards and could cause the survivor to suffer a bad fall.  Alternatively, most toys tend not to fair well when a wheelchair runs them over.  Cords from Christmas trees or lights can also become trip hazards and should be placed in a manner that will not pose danger to a mobile survivor.  There are many other practical issues to consider regarding the holiday meal.  Can the survivor reach a given dish or will they need help?  Has silverware been left on a counter that is too high for the survivor to reach?  Can the front of the survivor’s wheelchair fit under the table?  If the survivor uses an augmentative speech device like an Ipad, is there room at the table for it?  Is a side table perhaps needed for the device to be placed upon?  Small changes in room and furniture layouts can make a huge difference to both a survivor’s sense of inclusion and his or her overall enjoyment of a holiday celebration.

 
The weather can also play a notable role in adjustment to different locations.  Walking up an icy pathway can be quite difficult and possibly dangerous.  Some survivors who normally use a walker may be safer in a wheelchair over these icy surfaces.  Moreover, some survivors in wheelchairs may need more help getting across an icy or snowy surface.  In such a situation a loved one may need to aid in pushing more than would otherwise be required or just pay attention to helping keep the chair from sliding in the wrong direction.

 
Families of brain injury survivors may want to put some thought into how loud they allow holiday celebrations to be.  Some survivors find that they are more sensitive to noise than previously and loud noises may provide a catalyst for unwanted agitation and/or anger.  These survivors may benefit from attending smaller celebrations or spending their time in a quieter room away from the main celebrations.  This can also be a relevant issue when considering attendance of holiday religious services.  Some survivors may find busier houses of worship  or busier times at those houses of worship to be problematic and may do better at less busy times or benefit from selecting a less busy house of worship.

 
One more such consideration associated with location relates to how many celebrations a survivor and his or her family may be planning to attend.  Some families have the tradition of going from house to house to multiple holiday celebrations throughout the day.  However, survivors often become fatigued quite easily and holiday celebrations tend to be long and active events.  For many survivors, attending multiple celebrations in the same day may be very difficult.  Some survivors may benefit from spending a shorter amount of time at each such celebration.  Survivors and families must also consider the fatigue sure to accompany constant transferring to and from vehicles and the necessary related packing up and unpacking of equipment.  For instance, getting a wheelchair in and out of a car repeatedly throughout a day can be very taxing on the backs of survivors’ families.

 
These are some of the considerations regarding the location of holiday celebrations that survivors and their families may wish to think about when identifying adjustments that may need be made to holiday celebrations.  The next part of this series will focus more specifically on brain injury survivors’ participation in holiday celebrations.

 

Learn about brain injury treatment services at the Transitional Learning Center: tlcrehab.org

 

NFL Settlement Battle

Lawyers representing the vast majority of National Football League retirees seeking legal recourse due to the deleterious effect upon their lives resulting from brain injuries suffered throughout the course of their careers will be in court on Wednesday to argue over the terms of the settlements between the NFL and those former players.  This may be the final settlement between the NFL and the former players, though some players have opted out of the settlement in order to pursue individual lawsuits.

http://www.reuters.com/article/2014/11/17/us-nfl-concussions-idUSKCN0J123S20141117

Learn about brain injury treatment services at the Transitional Learning Center: tlcrehab.org

Processing Speed

One area of difficulty that many brain injury survivors experience is a decline in processing speed.  Processing speed is the length of time it takes for a person to understand, access or utilize information.  For instance, if someone asks me which restaurant I would like to go to, there’s a distinct internal protocol followed.  My brain has to understand the question that is being asked, review the relevant information and then generate an answer.  In this example, I first need to ensure that I understand the question.  Next, I may have to think about issues such as what my favorite types of foods might be, how recent restaurant experiences may come into play, where given restaurants are located, affordability of the restaurants under consideration and which restaurants that others involved may enjoy.  Finally, after reviewing this information I need to generate an answer.  As you can see from the example, even a simple question can involve a great deal of processing.  Most people take for granted that their brains can process all of this information quickly and efficiently.  However, after a brain injury many survivors find that this is a much slower, much more difficult enterprise in which to engage.
Difficulty with processing speed has the potential to negatively impact almost any situation.  A survivor may take more time to answer seemingly simple questions such as in the example given above.  The survivor may take more time to react to all manner of situations.  For instance, a survivor may have difficulty avoiding cars in a parking lot because he or she is unable to react quickly to the stimulus provided by arriving and departing vehicles.  The survivor may also have more difficulty following conversations.  Each word, each statement, each exchange in a conversation needs to be processed.  As a result,  the survivor may struggle to keep up with the other participant in a conversation (especially if that other person is speaking rapidly).  This often becomes most problematic in heated, emotional discussions.  When we are in these types of conversations, we tend to speak faster.  Many survivors complain that they are not given enough time to process and respond in conversations.  A survivor will all too often leave such a situation feeling frustrated, ignored or even bullied.
Additionally, many survivors with processing speed difficulties struggle with or are completely unable to engage in multi-tasking.  Each individual task requires so much processing effort that attempting to add even a single concurrent extra task becomes a huge burden.
Here are a few ways to help a survivor with processing speed difficulties:
1.  Allow the survivor extra time to think, act and respond
2.  Only give the survivor one task at a time to complete
3.  Allot extra time for tasks, so the survivor does not feel rushed
4.  Remember to ask often if the survivor needs more time to think, respond or act
5.  Stay on one topic at a time during conversation and be careful not to talk more quickly than the survivor can process
6.  If the survivor seems unable to process information at a given moment, if possible put the current conversation or activity on hold until a later time when the survivor might feel better equipped
7.  Ask the survivor if he or she has any new ideas or thoughts that may have been generated after the initial iteration of a conversation or activity was completed.  For instance, many times a survivor will report that he or she thought of a great response a few minutes after a conversation was over and would appreciate an opportunity to share that response with others.

Learn about brain injury treatment services at the Transitional Learning Center: tlcrehab.org

 

 

NHL Concussion Lawsuit

H0ckey can be a tough sport.  Players routinely receive concussions from checks, falls and fights.  In fact, many great hockey players have had to retire due to concussions suffered over the course of their careers.  Hall of Famers Pat LaFontaine and Scott Stevens are just two of the better known players who have entered into retirement for this reason.  Sports Illustrated has assembled this gallery featuring some of the best known players whose careers have ended due to damage wrought by concussions.

http://www.si.com/nhl/photos/2013/04/17nhl-careers-ended-by-concussions

Of course, concussion is just another name for a brain injury.  Pat LaFontaine has been particularly active in educating others about brain injuries.  Below is a video on Brainline in which he describes the brain injury ordeals he experienced as a direct result of his career in hockey.

http://www.brainline.org/content/multimedia.php?id=898

A number of retired hockey players are following the example provided by former NFL football players and are seeking legal action against the National Hockey League.  These players have accused the NHL of not doing enough to prevent brain injuries, of not sufficiently informing players of the risk of brain injuries and of even encouraging the fights which can lead to these injuries.

http://www.usatoday.com/story/sports/nhl/2014/10/20/concussion-lawsuit-vs-nhl-filed-in-federal-court/17638661/

If the NHL lawsuit produces results similar to those seen in the NFL lawsuit, the NHL could stand to lose lose millions of dollars.

Learn about brain injury treatment services at the Transitional Learning Center: tlcrehab.org