Category Archives: Learning about Brain Injury

What Happened to Your Shoes?

We each have a way that we are used to visualizing ourselves. It is part of our identity. We may comb our hair in a certain way, wear certain brands of clothes or wear certain shades of lipstick. For each of us, when we see ourselves in the mirror in our typical manner, we feel normal. Any change to our usual look or style may cause us discomfort or stress.

After a brain injury, survivors may change their normal looks or styles. Sometimes, this is done for safety or practicality. For instance, certain pairs of sneakers may not supply adequate ankle support for safe ambulation or certain shirts are too hard to put on independently. However, in other cases survivors fall into habits of “dressing down” on a daily basis. Survivors may say to themselves, “I am not going to same places that I used to go, so I will just wear my ugly jogging pants. Who cares, right?” Or, survivors may say to themselves, “Since I am not doing anything important, I am not going to dress importantly. I will just put on a t-shirt and sweatpants every day instead of my favorite shirt and pants.”

This “dressing down” can cause a negative emotional feedback loop. Dressing differently serves as constant reminders that survivors are not living the same lives as before. Survivors see themselves dressed poorly, which may make them feel badly. Feeling badly causes survivors to be even less inclined to dress nicely so they continue to dress poorly. Seeing themselves dressed poorly on a daily basis may make survivors feel even worse than before. For some survivors, this contributes to a downward spiral of moods.

As “dressing down” makes many survivors feel badly, dressing as they would prior to their injuries often makes survivors feel better. Even if survivors are not going to the same jobs or activities as before, putting on nicer clothes on a regular basis may help them feel emotionally better. For ladies, this often includes putting on make-up or jewelry, as they would have prior to their injuries. The experiences for survivors of seeing themselves fully “put together” will often improve their moods. For many people, even without injuries, if they “look like a million dollars” then they “feel like a million dollars.” And when moods are improved, other facets of their lives are often easier and better. So break out your nice wardrobes and feel better!

Learn about brain injury treatment services at the Transitional Learning Center! Visit us at: http://tlcrehab.org/

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Beware Slippery Sidewalks

Slips and falls due to slippery sidewalks and other similar surfaces are a concern, whether an individual does or does not have a brain injury. However, the risks are often more frequent and more serious after an injury.

Many brain injury survivors are able to walk after their injury but find that their balance is not as good as it was prior to their injury. Since these survivors can lose their balance more easily, this puts them at a greater risk for a slip and fall on wet, slippery surfaces. Similarly, many survivors do not have the same quick reaction times as they did prior to their injuries, so they have more difficulty catching their balance if they have a slip. Additionally, many survivor have one side of their bodies that is weaker than the other. When they fall, they tend to fall to the weaker side so there is little opportunity to brace themselves for falls. This potentially makes falls far more serious than prior to their brain injuries.

Survivors in wheelchairs are also at risk for accidents due to slippery sidewalks and other surfaces. The wheels on wheelchairs easily slip on wet surfaces. Wheelchairs pick up speed very quickly on wet sidewalk ramps, leading to potential accidents and injuries, due to an inability of survivors to control their wheelchairs at these higher speeds. Wet leaves and other slippery items on ramps often exacerbate these risks.

Keep the following tips in mind to reduce slip and falls on wet sidewalks and similar surfaces:

  1. Always check the weather before you head out to your daily activities.
  2. Make sure leaves are regularly swept up in locations where they tend to accumulate on sidewalks. Don’t be shy about mentioning to companies you may not be able to enter their businesses if there are wet leaves by entrances and exits.
  3. Be extra careful when walking or traveling in a wheelchair both during and after a rainstorm.
  4. When possible, use sidewalk ramps that are covered by an overhang which can repel the rain.

Learn about brain injury treatment services at the Transitional Learning Center! Visit us at: http://tlcrehab.org/

Emilia Clarke is a Survivor!

On Game of Thrones, Emilia Clarke’s character Daenerys Targaryen is tough as nails and always up for a battle. But perhaps Clarke’s toughest personal battle was when she had brain aneurysms, which included multiple surgeries to save her life. Click the link below to read her personal account of her brain aneurysm experience, including surgery and aphasia:

https://www.newyorker.com/culture/personal-history/emilia-clarke-a-battle-for-my-life-brain-aneurysm-surgery-game-of-thrones

Learn about brain injury treatment services at the Transitional Learning Center! Visit us at: http://tlcrehab.org/

The Rehabilitation Partnership

One of the most basic truths of successful rehabilitation is that it involves a partnership between the patient and therapists/doctors.  It is important to understand what this partnership entails, namely that without both parties’ investments in the process the patient will only see limited improvements.  This also means that each side has a responsibility to the other side to ensure success.  The job of rehabilitation is a shared job between the patient and rehabilitation professionals.

There are a number of implications to this basic truth of the rehabilitation partnership.  A therapist/doctor cannot make a patient improve.  A therapist/doctor can only work with a patient to help the patient improve.  Keeping this in mind should dissuade rehabilitation professionals from imagining themselves to be like Superman, swooping in to save the patient from the patient’s brain injury.  Brain injury rehabilitation simply does not function like a comic book story.  This realization should also empower the patient with the knowledge that his or her thoughts, feedback and effort are a vital part of rehabilitation (without which success cannot be fully achieved). Professionals need the patient’s thoughts and feedback to best plan and implement therapy.  Every patient is different, so a method that helps one patient may hinder or even harm another.  There is no way for a professional to know this without feedback.  This should also dissuade patients from being too passive when engaging the therapy process.  Rehabilitation professionals cannot help a patient improve if the patient will not try to help him or herself.   They cannot do the work for the patient.

When this partnership between patient, therapists and doctors truly comes together, everyone becomes a vital member of the rehabilitation team.  However, it is important to remember who needs be recognized as “team captain.”  The patient is the “team captain” in the sense that the process is ultimately focused on the patient.  The patient needs to share with the team any and all goals, expectations and dreams.  When the entire team has this information (which has to be updated on a regular basis), the team can best determine the direction therapy needs to take.  For instance, if a patient was formerly a chef and dreams of returning to that former occupation, a great deal of therapy will be focused on activities in the kitchen.  If the patient never went in the kitchen outside of opening the refrigerator door, then therapy will clearly be focused on other activities.

A successful partnership will generally allow the patient and rehabilitation professionals to have a mutual understanding and appreciation of one another.  It will also foster openness, honesty and trust between the patient and the rehabilitation professionals.
Remember, teamwork makes the dream work!

Learn about brain injury treatment services at the Transitional Learning Center! Visit us at: http://tlcrehab.org/

Bret Hart is a Survivor!

Bret “The Hitman” Hart is a wrestling legend.  For years he traveled the globe as one of the biggest stars in the world of wrestling.  But even a tremendous athlete like Hart can have a stroke.  Hart had that stroke in 2001.  He spent three months in a wheelchair and countless hours in rehabilitation.  His hard work paid off in an excellent recovery.  Today he represents the March of Dimes Canada’s Stroke Recovery Program, inspiring other stroke survivors!  Click on the link below to watch a video of Bret Hart speaking about his stroke experience:

Learn about brain injury treatment services at the Transitional Learning Center! Visit us at: http://tlcrehab.org/

Give. It. A. Minute.

One of the most common mistakes that brain injury survivors’ loved ones make after an injury is not giving the survivors enough time to respond or take an action.  For instance, a survivor and his family may be at a restaurant for dinner.  When the survivor is struggling to place his order, a family member may jump in to place the order for him.  If given enough time, the survivor may have been perfectly able to place the order but the family member did not give him enough time to respond.

There are a few reasons why survivors’ loved ones tend to not give enough time to the survivor to respond or take an action.   One reason is that silence is uncomfortable.  For instance, if a survivor is needing extra time to respond, the silence may be so uncomfortable that the loved one will jump in and speak “for” the survivor.  A second reason is that is uncomfortable to watch someone struggle.  As an example, a survivor may be slowly, and with great effort, reach toward an item on a table.  The loved one may be so uncomfortable watching the survivor’s struggle that they reach over to get the item for the survivor.  A third reason is the feeling that the survivor and loved ones are in a rush or feel like they are causing someone else to slow down.  For instance, a survivor in a wheelchair may be pedaling down a hospital hallway but family members, concerned that the wheelchair is blocking the nurses, decide to push the survivor’s wheelchair to more quickly reach their destination.

However, it is important to give the survivor more time.  First, and most importantly, if the survivor is able to make a response or take an appropriate action when given extra time, they should be allowed the independence and respect to do so.  By unnecessarily jumping in, loved ones are taking away the power and the dignity of the survivor to take care of their own needs.  Second, although a survivor may need extra time and effort to complete a task, they are more likely to get faster and more efficient over time with practice.  By doing the task for them, the loved one is taking away vital practice from the survivor who is trying to master a task.  Third, the survivor may need extra time to safely complete an activity.  After an injury, certain tasks may have concrete steps which take time or require more processing time to successfully finish without risk.  For example, most uninjured individuals simply stand up when they are ready to leave a room.  A survivor may have to go through multiple steps to safely transfer from sitting to standing.  These steps require extra time so the survivor can safely transfer.

When wondering about the survivor’s need for extra time and if they should jump in, loved ones should ask themselves the following questions:

1.  Is the task truly out of the survivor’s skill range or do I just need to be more patient to allow them to complete the task?
2. Are we actually in a rush or is a little extra time a reasonable request?  For example, if a survivor needs an extra ten seconds to place an order at a restaurant, keep in mind that the waitstaff is getting paid to serve you.  Ten extra seconds is not an unreasonable request.
3. What message am I giving to the survivor if I do not allow them to do for themselves when they are able to so?
4. Is the issue really about the survivor needing extra time or my personal discomfort in this situation?
5. By going faster, have I compromised my or the survivor’s safety?

In most cases, a little extra time will help a brain injury survivor be more successful and allow everyone to have a better experience!

Learn about brain injury treatment services at the Transitional Learning Center! Visit us at: http://tlcrehab.org/

Using the Open Chair Technique

Survivors with brain injuries push themselves to get better.  Staff members at TLC see this every day.  Survivors push themselves to walk better.  They push themselves to speak better.  They push themselves to improve their memory.  They push themselves in every aspect of the rehabilitation experience, but recovery from a serious brain injury can be quite slow.  It is almost always slower than the survivor would prefer it to be.  Unfortunately, this leads some survivors to speak poorly about themselves.  They say things such as “I am a failure because I am not 100% improved” or “I should be much better than I am now.  I am failing at therapy”.  This negative self-talk can lead to emotional difficulties such as stress, low mood and sometimes even to depression.

If looked at objectively, this negative self-talk is often due to unrealistic expectations that the survivors have regarding their recoveries.  The survivors may believe that the amount of time necessary to recover is in excess to that which they expected, even when the medical research shows that they are progressing at a normal rate.  By expecting faster or better results than are humanly possible, survivors can cause themselves unnecessary frustration.

Interestingly, these same survivors who hold unrealistic expectations of themselves generally do not hold these same expectations of others.  They are often more logical and understanding of other survivors than they are of themselves.  It is common at TLC for the same patients who have unrealistic personal expectations to support realistic expectations in other patients.  They will make supportive statements to other patients such as “Don’t worry and take it slow.  You will get better over time.  You are running a marathon not a sprint.”  When the patients with unrealistic expectations are asked if they believe the advice they are giving to others, they almost always answer in the affirmative.  They understand that the brain injury recovery process is a slow one which requires lots of work.  They understand it is a long-term process.  But they decide for whatever reason that their personal recoveries should take less time than those of others, holding themselves up to unfair (often impossible) standards.
One way to manage this negative self-talk is by using the “open chair” technique.  How this technique works is that patients are asked to imagine they are sitting next to themselves and that the person occupying their seat is someone else with the very same issues and deficits that they have.  The patients are then asked to give this “other person” honest feedback about how the “other person” is doing.  Often, patients find that this leads them to soften their tones and to make more supportive personal statements regarding their own progress.  Similarly to when they are actually talking to other patients, when they address themselves as that “other person”  patients demonstrate more realistic expectations and are less likely to attack themselves.  The “open chair” technique often helps patients treat themselves not only better, but also more fairly and honestly.  By being more fair and honest to themselves, survivors tend to have an improved mood.  And the better the mood that survivors can maintain, the easier it is to navigate the rehabilitation process.

Learn about brain injury treatment services at the Transitional Learning Center!  Visit us at: tlcrehab.org

Michael Johnson is a Survivor!

Olympic gold medal sprinter Michael Johnson has always kept himself in great shape, even in retirement from his celebrated professional career.  However,  it is possible for even a healthy individual to have a stroke.  Michael Johnson recently suffered a transient ischemic attack (TIA), also known as a “mini stroke”.  Though he has recovered well from the TIA, the experience taught him a valuable lesson about vulnerability and motivated him to educate others regarding the risks for stroke.  Click the link below to read more about Michael Johnson’s stroke experience:

https://www.bbc.com/sport/athletics/46798931

Learn about brain injury treatment services at the Transitional Learning Center!  Visit us at: tlcrehab.org

 

Bike Helmets Are Not Just For Kids

This post, as many of the posts on this blog have been, was motivated by an everyday experience (had either at work or in my personal life).  This particular post was influenced by a conversation I had on Facebook.  Recently, a friend of mine posted a picture from 20 years ago.  The picture was taken after he had experienced a serious bicycle accident.  He mentioned breaking several bones and having a concussion.  He said that the accident was proof that bicycle helmets work and that he needs to wear one all of the time.  I mentioned that I have seen several patients with severe brain injuries due to bicycle accidents and agreed that he needs to wear a helmet whenever bicycling.  He responded by telling me that the accident was so serious that it affected his memory.  He woke in the emergency room with a note taped to his chest telling him what had happened.  Before reading that note,  he had no idea how he might have ended up in the emergency room.

This brings us to a worrisome trend I have noticed.  While many more children are wearing bicycle helmets while out riding than in the past, many adults are not.  This is especially concerning when looking at accident data from the National Highway Traffic Safety Administration (NHTSA).  According to the NHTSA, the average age of citizens suffering bicycle accident fatalities as of 2016 (most recent data available) is 46.  Moreover, for children under the age of 14 there is on average approximately 1 death per million in the resident population while for adults between the ages of 50 and 65 that figure jumps to over 4.6 per million.  These findings should should raise concern in every adult bicycle rider. (For this data, and further information on bicycle safety from the NHTSA, click on this link) https://crashstats.nhtsa.dot.gov/Api/Public/ViewPublication/812507)

It is likely that a chief factor in this disparity is the fact that many states and cities have laws mandating that children wear helmets while there are no corresponding laws governing adult behavior.  For instance, it is illegal in the city of Houston, TX for anyone under the age of 18 to ride a bicycle without a helmet but there is no equivalent law for adults.  These laws ignore a basic medical reality.  Adults can just as easily suffer a brain injury as any child and, based on that NHTSA data, are dying from bicycle accidents at a distressingly higher rate than children.  Just as children need to protect their brains from injury, so do adults.  Reaching the age of 18 does not magically make a bicycle rider immune to serious accidents.  Everyone, including adults, should always wear a helmet when riding a bicycle!

Learn about brain injury treatment services at the Transitional Learning Center!  Visit us at: tlcrehab.org

Practice Makes Proficient

Neurorehabilitation from a brain injury involves learning and re-learning a long list of common activities.  Patients spend hours honing skills such as naming well-known items, transferring to and from a wheelchair and using adaptive equipment.  Therapy sessions often consist of countless repetitions of the same action, drilling these essential skills over and over (and over).  Further, therapists will usually send patients home with discharge plans outlining continued practicing of these same skills at home.  Sometimes, patients will wonder why they have to practice these activities to such a degree.  After all, if they demonstrated the skill once (or more likely a multitude of times throughout inpatient therapy) doesn’t that serve as proof positive that they now possess said skill?  Why is this repeated practice necessary?

In reality, to truly become proficient at any skill a great deal of of practice is necessary.  Just because a patient has succeeded at demonstrating a skill on one occasion does not mean that he or she will succeed in the future.  This is true for any life activity or field of endeavor.  For instance, imagine hearing the following overhead announcement while taxiing an airport runway prior to takeoff:  “Ladies and gentleman, welcome aboard flight 683 to Phoenix.  My name is Captain Mike and I will be your pilot today.  I have successfully flown a plane once.  I anticipate a smooth flight today.”  After hearing this announcement, most passengers would probably scream for the exits immediately.  Who would trust a pilot to fly a plane with a history of only one successful attempt?  We instinctively recognize that lots of practice is necessary to trust that a person can reliably and competently complete a given task.  This holds just as true for therapy as it does for the for flying of a plane.  Repeated practice, both in therapy and at home, is necessary for a patient to hone the skills and competencies necessary to successfully accomplish rehabilitation goals.  It is only through practice that patients can become proficient.

Learn about brain injury treatment services at the Transitional Learning Center!  Visit us at: tlcrehab.org